PoTS Awareness Day/Month!

Hello, my beautiful Ramblers!! I know its been a loooooong time since I made a post. Unfortunately, my health has not been the greatest. So keeping my blog up and running had to be put on the backburner for a little while.

This post comes to you a day late…but I still wanted to do a post because technically PoTS awareness is for the month of October but the actual date in Australia is the 25th. You are probably wondering what is this PoTS that I keep mentioning. So let me explain.

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Spondyloarthritis Awareness Month!

💙 This May I’m also wearing blue for Spondyloarthritis awareness! 💙

Spondyloarthritis can affect anyone: male, female and children and cares nothing about age. It is an autoimmune inflammatory illness of the spine BUT it attacks all of the body as a whole too. Tendons, tissues, joints and your whole body systems. It doesn’t know how to stop and will just keep attacking. It is a disease that is so complex with all the information you can find on it…and even to this day I still get so confused with the information out there. But regardless I still want to spread the word and spread the basics of these diseases. It’s not something I ever thought I’d be facing but here I am. There may be medications you can go on to help slow it down but as shown below it is degenerative in nature and will continue to do its damage. So as an AS warrior I just wanted to share a little about what it is I go through for just a little bit of understanding for that pain.

PS – Spondyloarthritis is the umbrella term for a group of diseases that cause inflammation in the spine (“spondylitis”) and joints (“arthritis)

#chronicillnessawareness #invisibleillness #makingtheinvisiblevisible #fightforabetterday #spondyloarthritisawareness #ASwarrior #Spreadawareneess #chronicillnesses #blueforarthritis #autoimmunediseases #arthritis

Fibromyalgia & CFS Awareness Month!

💜 May is Fibromyalgia & CFS Awareness Month!! 💜

Today I’m wearing purple for Fibromyalgia and Chronic Fatigue Syndrome. May is a month to bring awareness to the invisible illnesses that easily slip under the radar. These illnesses can very much be seen as “invisible illnesses” and are more than not, hard to see if you are only looking surface level…but they are there and very real and VERY debilitating. It’s an illness that literally attacks your whole body, a multi-system disease, it doesn’t discriminate. The list of symptoms is a long one and can vary from person to person but chronic pain and fatigue, that goes beyond what you could ever imagine, are the primary factors but other symptoms can be:

  • Cognitive issues
  • Tiredness that can’t be fixed by sleep
  • Insomnia
  • Tender joints, pressure points and muscles
  • Cramps/tremors in muscles
  • Neurological symptoms such as muscle weakness and numbness
  • Hypersensitivity to touch, light, sound, heat/cold
  • Fibro fog – living in a haze…confused or forgetful
  • Chronic Headaches
  • IBS
  • Flu-like symptoms
  • Nerve Pain
  • Reduced immunity
  • Widespread pain over the whole body
  • Costochondritis (inflammation of ribcage)
  • Hair loss

And that is barely the tip of the ice-burg. These conditions are ones that have low awareness so please if you know of anyone suffering from this…we don’t want sympathy for our suffering just understanding. So please share the awareness, so we feel less invisible because “we don’t look sick”. Because I can say that’s one of the hardest things about having these illnesses. And it has a way of making you feel more alone than ever. Spread awareness to help others see just how this illness can betray a person and their body, because let me tell you…it steals all your control and so much more. I haven’t felt more betrayed by my body then the day I began getting sick.

So let’s bring awareness starting today. Much love to all the warriors out there. Continue shining your light and never stop fighting for a better day 💜💜.

#chronicillnessawareness #invisibleillness #makingtheinvisiblevisible #fibromyalgiaawareness #Shineyourpurplelight #fightforabetterday

Adenomyosis Awareness Month!

💝 April is Adenomyosis Awareness Month!! 💝

Adenomyosis affects 1 in 10 women and can cause so many debilitating symptoms. I was recently diagnosed last year with Endometriosis and Adenomyosis. It explained a lot to me. It is a condition that not many are aware of and one I would really like to shed some light on.

For those interested in learning more, Adenomyosis is the abnormal invasion of endometrial tissue into the muscular wall of the uterus. It is sometimes referred to as “endometriosis of the uterus.” Endometrial tissue that would normally line the uterus becomes dysfunctional in Endometriosis and Adenomyosis. Adenomyosis can begin in a more focused area and form almost like a fibroid or it can be “global” and spread out affecting the whole uterus. It is also continuous and progressive, adjacent with endometriosis on the bladder or bowel or ovary stuck to the uterus.

A few symptoms of this are as follows:

  • It may cause severe pain, especially with periods but not limited to.
  • It may cause heavy bleeding even to a dangerous level of anemia.
  • It can cause infertility.
  • It can cause complications of pregnancy for those who do get pregnant.
  • Nausea and easily feeling full
  • Chronic Fatigue
  • Referral leg pain
  • Extreme pain with bowel movements
  • Chronic Pelvic/abdominal Pain
  • Bloating/Swelling
  • Bladder issues

And so many other symptoms that effect our daily lives. It is very difficult to treat and there is very limited success with excision to help with chances of falling pregnant.

This is a progressive disease that does not get much awareness and we need more research to understand why this occurs, how to potentially prevent it and how to treat it without going straight to a hysterectomy!
Progestins and hormone blockers seem to be our only tools and not all too effective.

#adenomyosis #adenomyosisawarenessmonth #adenomyosiswarrior #findacure

Life Update As Promised!

Some may have wondered, if at all, where I disappeared off to last year. And this post here is going to try and explain what made that the case. I’ve been debating for quite some time, what to divulge or whether, in fact, I really wanted to share this information with the world…because currently, I can count those people on my hands. It wasn’t something I initially thought I would share, I felt that those that really needed to know were filled in. And others because I thought they might murder me dead if they found out I didn’t tell them (yes, you know who you are lol). But after weeks of tossing this information around in my head, I decided that my blog was made for the purpose of not only sharing books but also sharing awareness for chronic illnesses. These new particular ones, I guess, held me back from sharing because there is still kind of a ‘we don’t talk about… ‘(anyone singing that a little? 😆) air around certain illnesses. But I think that’s where the sufferers of these conditions get a little lost. Because one, they feel they can’t really talk about it; or two, zero awareness is then spread about these illnesses. So because of that very reason, is why I decided that I would talk about it.

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In The Life Of The Chronically Sick…

Hey, my beautiful Rambles! It’s been an age since I’ve made a post, which I do apologise for but the COVID caught me about 6 weeks ago and it has been rough going, to say the least. I can’t believe I made it 2 years without catching it, to be honest…but it hit and stubbornly refused to let my body get off that easily. Even now I’m still showing symptoms of having it and the rest of my body just decided to go into hectic flare mode…so it has been an interesting time.

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In The Life Of The Chronically Sick…

Hey my beautiful ramblers! Dude, I seriously hadn’t been expecting to do another of these posts this week. Especially not one the following day lol. But something came up, that I have thought long and hard about sharing because I know topics like this one, can be a whole can of worms scenario lol. But after thinking on it, I truly felt it could help you see a little more into those of us that are chronically sick…and that sometimes we can’t just do things because it is required…and sometimes, definitely, not without first checking in with our doctors. So I wanted to speak for a couple of people, who I know, that have had either comments or judgement made on them about vaccinations.

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In The Life Of The Chronically Sick…

Hey my beautiful ramblers! I’m back with another in the life of post…this one isn’t going to be that long…but today has been an exhausting day. Have I done anything to tire myself? Nope, my body just does that all on its ownsome, for no reason. Between dizzy spells, pain on more higher level, fatigue thats mostly kept me in bed for the day and just generally feeling off. It has just truly left me spent, mentally and physically…I did have the fun time of getting jabbed three times, though, today. Once for my recurring blood test and twice for my monthly injection for my Spondyloarthritis treatment. Nobody loves a needle and especially not three in the span of 15 minutes lol. Okay, I admit, you do sorta get used to it to a point, but if I never saw a needle again I’d be totally fine by that.

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In The Life Of The Chronically Sick…

Hey my beautiful ramblers! I’m back with another in the life of the chronically sick post again. Let me know in the comments if you like these sort of posts, and whether I should keep doing them. 🙂

I just wanted to pop on quickly, to share a little about what life can sometimes look like for us…and the randomness that can be thrown at us. Like take me right now for example…

I’m currently feeling super weird right now, like I’ve drugged myself, without actually taking anything. Gotto say that’s a lame super power lol. But man, my head is both light and heavy at the same time. Like my face wants to do it’s own version of a landslide, whilst another part of my head feels floaty like air is just swishing around in my head. I’m gonna take a wild stab and say it’s to do with exhaustion..please, don’t ever take showers for granted guys, they literally ruin me every time!…Ugh, regardless, I really don’t wanna feel drugged, I hate that feeling so much. It’s why I try to stay away from opioids, even if they can help with pain, my body just does not react well with them, at all…so it kinda defeats the purpose in the end. So like any sane woman I’m eating chocolate wishing away my problems. What are you currently doing wherever you are?

Seeya next time 😊💖

In The Life Of The Chronically Sick…

Hey my beautiful ramblers! I know I’ve been terrible of late and haven’t been around much, keeping things active. Life has been really stressful. Between family things and health, life has felt very up in the air and totally out of my control; Which my OCD ways are struggling with. We are also in our 8th week of lockdown, which is kinda what I wanted to talk about…coz it’s got me thinking, that maybe I can help shed a bit of light on the life of the chronically sick.

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In The Life Of The Chronically Sick…

So you guys may have noticed that I’ve been MIA for a couple of weeks now. Or maybe you totally didn’t lol. Either way, I’m finally making my presence once again back on the social platforms, I bet you totally missed me, not 😂. Nothing exciting happened in my absence…instead, over the last few weeks I actually got quite sick and run down and I’m only just now starting to feel a bit more human again. Still mostly in bed due to extreme fatigue levels but I don’t feel half dead at least, so that’s a win right?

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In The Life Of The Chronically Sick…

So I thought I might start writing some random posts about my life and share in the journey of my health. As a lot of you would know, I’ve had a lot of health issues over the time and more recently was diagnosed with Spondyloarthritis an autoimmune inflammatory disease. What can I say? I love to keep my mum on her toes…since I was a little kid I was the one who got the weird sicknesses, like say Scarlet Fever and Kawasaki disease along with Infantile Asthma and burst ear drums…now it seems my bodies goal is to collect as many chronic illnesses as it can lol. The list is ever growing 😅🤷🏻‍♀️

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Fibromyalgia Awareness Day

Many might not know but the 12th of May is awareness for Fibromyalgia. An invisible illness that not many can easily see directly. Which does make it hard for those suffering from the chronic illness. This illness is just one of the chronic illnesses that has definitely flipped my life around majorly. It causes severe fatigue and widespread pain. Among a lot of other symptoms that’d take me quite some time to explain. But basically it attacks every system in your body and there is no fix or cure for this. Doctors are only just now starting to even recognise this as an illness, which is a great start. But sometimes we just need the people around us to understand a little of what we go through each day. Here is a small glimpse in a life struggling with Fibromyalgia and other invisible illnesses I have.

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